This is a blog about a boy with cerebral palsy and epilepsy, and all the people who love him. Sometimes it will be about me, my husband or our Little Bear, who is equal in all ways to his older brother. Sometimes it will be about something completely random. But mostly, it’s about Bunz.
I’m writing because life is complicated, intense, poignant, fascinating, edgy, sometimes scary, often beautiful and unexpectedly funny when you have a child with special needs and I feel compelled to share all that with you.
I’m writing because I hope to read these posts years from now and remember how sweet these days are.
I’m writing in hopes that my words will reach a new parent in the NICU and assure him as he sits next to his baby’s incubator, or as she sobs in the pumping room, or as they scramble to answer the phone in the middle of the night when the charge nurse calls with an update — that they will absolutely laugh and rejoice in the years to come. Absolutely. Don’t get me wrong — you will grieve, too. You will grieve and fight and sob about your child’s struggles, about the life you thought you’d have, about feelings that you can’t explain even to yourself. But I hope to show you that someday peace will come knocking and it’s ok to let it in.
I’m writing because I hope to share creative ideas and strategies with other parents – special needs or not.
And most importantly, through writing this blog, I hope to sort out these very complicated feelings and ideas in my head and connect more fully with my heart.
Thank you, Bunz, for all that you bring to our life.
We love you.
About the blogger: I’m a professional writer with a PhD in molecular microbiology and a MA in science writing. Right now, I should be working on a fun little piece about the origin and evolution of leprosy, but I’m glad to be here writing to you. 🙂